导航社会角色:探索与残疾相关的压力对多发性硬化症少数群体个体的影响
Beatrice Lee1, Teresa Granger2, Erin Mistretta3
1Department of Rehabilitation Sciences, University of Texas at El Paso, 500 W University Ave, El Paso, TX 79968, United States.
Multiple sclerosis and related disorders
|September 20, 2025
概括
与残疾相关的压力对患有多发性硬化症 (MS) 的种族/族裔少数群体的社会参与产生负面影响. 解决这种压力对于加强他们参与社会角色和责任至关重要.
科学领域:
- 健康 公平 卫生 公平
- 神经免疫学 神经免疫学
- 健康的社会决定因素
背景情况:
- 多发性硬化症 (MS) 的种族/民族少数群体面临着独特的挑战.
- 系统性不平等,文化因素和耻辱加剧了这些群体的MS经历.
- 了解影响社会参与的因素对于这一群体至关重要.
研究的目的:
- 调查与残疾相关的压力与社会参与之间的联系.
- 评估压力如何影响MS少数群体参与社会角色和责任的能力.
主要方法:
- 分析了224名患有MS的种族/少数民族参与者的队列.
- 使用等级回归来评估与残疾相关的压力与社会参与之间的关系.
- 人口,社会经济和功能限制变量被控制.
主要成果:
- 与残疾相关的压力增加与社会参与减少有显著的关联 (β = -420,p < 0.05).
- 整体模型解释了48.3%的社会参与差异 (R2=.483).
- 与残疾相关的压力成为社会角色参与的显著负面预测因素.
结论:
- 与残疾相关的压力是MS的种族/民族少数群体社会参与的关键障碍.
- 医疗保健专业人员应优先考虑解决残疾相关压力的干预措施.
- 需要个性化的支持策略来促进社会参与和改善生活质量.
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