基于国际功能,残疾和健康分类 (ICF) 的问题分析,用于塔卡亚苏动脉炎患者
Elif Gur Kabul1, Sinem Bozcuk2, Bilge Basakci Calik2
1Faculty of Health Sciences, Department of Physiotherapy and Rehabilitation, Usak University, Usak, Turkey.
Respiratory medicine
|September 20, 2025
概括
这项研究开发了一套国际功能,残疾和健康分类 (ICF) 核心集,用于塔卡亚苏动脉炎,解决其功能和心理社会影响. 专家验证确保其在患者评估中的实用性.
科学领域:
- 类风湿病学 类风湿病学
- 康复医学 康复医学 康复医学
- 卫生科学 卫生科学 卫生科学
背景情况:
- 塔卡亚苏的动脉炎研究缺乏疾病特异性的国际功能,残疾和健康分类 (ICF) 框架.
- 现有的研究主要集中在临床,放射学和免疫学方面.
- 在了解患者的功能性,心理社会和多维影响方面存在差距.
研究的目的:
- 为了分析Takayasu动脉炎患者确定的问题.
- 为了开发一种特定于疾病的ICF核心集,用于Takayasu动脉炎.
- 建立一个框架,以评估高雅山动脉炎的功能和心理影响.
主要方法:
- 在18名塔卡亚苏动脉炎患者中使用了定性现象学方法.
- 卫生专业人员转录了患者对开放式问题的反应,并将其与ICF类别联系起来.
- 一个涉及16名风湿病学家的迷你Delphi过程验证了ICF类别.
主要成果:
- 122个ICF类别最初与实质性协议 (kappa=0.774) 有关.
- 建立了一个基于共识的74个类别的Takayasu arteritis ICF核心集,达成≥75%的协议.
- 48个患者确定的类别没有达到同意值.
结论:
- 开发的ICF核心套件Takayasu动脉炎通过专家风湿病学家的支持表明内容的有效性.
- 本ICF核心套件提供了一种经过验证的工具,用于评估Takayasu动脉炎的功能和心理层面.
- 该ICF核心套件有助于全面评估Takayasu动脉炎患者.
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