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检查脏移植接受者选择标准的透明度:全国跨部门研究
Belen Rivera1, Stalin Canizares1, Gabriel Cojuc-Konigsberg1
1Beth Israel Deaconess Medical Center, Boston, MA, United States.
JMIR AI
|September 21, 2025
概括
大多数美国移植中心在线提供有限的患者选择标准信息. 这种缺乏透明度阻碍了患者的治疗.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 移植手术 移植手术
- 医疗信息学 医疗信息学
背景情况:
- 患者选择的移植程序显著影响移植的成功.
- 许多患者缺乏关键移植接受者 (KTR) 选择因素的认识.
- 在线健康信息对于患者的决策越来越重要.
研究的目的:
- 量化美国移植中心对KTR选择标准的在线患者级信息.
- 利用自然语言处理和大型语言模型进行数据分析.
主要方法:
- 美国移植中心网站的横截面研究 (2024年6月至8月).
- 分析了自然语言处理和大型语言模型,深度高达3级.
- 收集了31个指导方针推的KTR选择标准的数据.
主要成果:
- 只有2.6%的指导方针推的KTR选择标准信息在网上找到.
- 社会经济和行为因素比医疗状况更频繁地报告.
- 财务/医疗保险是最常见的 (25.5%);其他因素,如社会支持很少 (<4%).
- 45.2%的标准没有在线信息;发现地理报告差异.
结论:
- 美国移植中心网站在很大程度上未能披露患者层面的KTR选择标准.
- 有限的在线透明度可能会阻碍患者选择最佳移植中心并接受移植的能力.
- 需要加强在线披露,以支持患者在移植方面的知情选择.
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