促进健康研究中的消费者伙伴关系
Raluca Ghebosu1, Leonie Young2, Benedette Watson3
1Australian Institute for Bioengineering and Nanotechnology, The University of Queensland, Brisbane, QLD, 4072, Australia.
Journal of translational medicine
|September 21, 2025
概括
培训提高了消费者对健康研究的参与度,改善了公众参与和研究影响. 一场研讨会改善了研究人员和消费者之间的伙伴关系,并确定了可持续培训模式的需求.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与研究.
背景情况:
- 消费者参与健康研究是知情的公共话语和研究指导的越来越重要的优先事项.
- 培训可以进一步加强消费者参与研究的好处.
研究的目的:
- 描述一个专为健康研究人员和消费者设计的研讨会.
- 提供关于消费者参与研究的网络和入门培训.
- 通过前后调查来评估研讨会的影响.
主要方法:
- 为卫生研究人员和消费者举办了一场研讨会.
- 来自澳大利亚和美国的经验为研讨会设计提供了信息.
- 参与者调查被用来评估研讨会的有效性.
主要成果:
- 研讨会提高了消费者对其在所有研究阶段的潜在贡献的认识.
- 研究人员报告说,在建立消费者伙伴关系方面,信心和理解得到了增强.
- 开发了一种新的分层模型来对消费者对研究的贡献进行分类.
- 持续培训的可持续融资被确定为一个关键优先事项.
结论:
- 研讨会作为一个有价值的网络和培训平台.
- 培训,资金和机构政策是有效的消费者-研究人员合作的关键推动因素.
- 研讨会补充了消费者和研究人员现有的培训框架.
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