为移植临床医生开发和评估文化向的辅导培训计划:试点研究
Elisa J Gordon1, Jessica Gacki-Smith2, Dahlya Manning3
1Department of Surgery, Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.
Kidney medicine
|September 22, 2025
概括
一个培训计划提高了移植临床医生的知识和信心,为潜在的活体脏捐赠者提供关于Apolipoprotein L1 (APOL1) 遗传测试的咨询. 这种干预措施增强了对正在接受脏捐赠评估的非洲血统个体的护理.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學.
- 遗传学 遗传学 是一个
- 医学教育 医学教育
背景情况:
- 对阿波利波蛋白L1 (APOL1) 基因测试对于评估非洲血统的活体脏捐赠者至关重要.
- 移植临床医生需要增强的知识和技能,以有效的APOL1遗传咨询.
- 需要文化定向的教育来解决APOL1在脏捐赠中的复杂性.
研究的目的:
- 开发和评估一项针对移植临床医生在APOL1遗传学和活捐赠咨询方面的文化定向培训计划.
- 评估该计划对临床医生关于APOL1测试的知识,自我有效性和信念的影响.
- 为潜在的活体脏捐赠者 (pLDs) 提高遗传咨询的质量.
主要方法:
- 在6个移植中心进行了前性,非随机化前/后试验临床试验.
- 参与者包括移植脏学家,外科医生,护士和高级实践提供者.
- 8个视频培训课程涵盖了APOL1生物学,遗传学,咨询技能,文化敏感性和共享决策.
主要成果:
- 培训显著增加了临床医生对遗传变异的知识 (P=0.04).
- 训练后,参与者报告说,他们对表示,解释和传达APOL1测试结果的信心更高 (P<0.001).
- 关于遗传学和种族之间的关系的信念在训练后显示不显著的下降.
结论:
- 该培训计划有效地提高了移植临床医生的能力,在咨询pLDs关于APOL1遗传测试时有效地提高了他们的能力.
- 该计划的传播可以帮助将APOL1测试和咨询纳入国家pLD评估中.
- 改善临床医师培训对于公平的移植实践至关重要.
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