体现的智慧:对功能性体征症状的可接受和有帮助的解释
Chloe Saunders1, Heidi Frølund Pedersen2,3, Charlotte Ulrikka Rask3,4
1Department of Functional Disorders and Psychosomatic Research, Aarhus University Hospital, Aarhus, Denmark chloe.saunders@clin.au.dk.
Medical humanities
|September 23, 2025
概括
为持久的症状制定共同的解释可以解决解释学上的不公正问题. 这个参与性项目为多系统功能体征 (FSS) 创建了一个框架,提供28个以患者为中心的解释和建议.
科学领域:
- 医学社会学 医学社会学
- 精神病学是一个精神病学.
- 健康心理学 心理健康心理学
背景情况:
- 持续的症状往往缺乏足够的解释框架,导致不利因素.
- 这种缺乏构成解释学不公正,影响患者的理解和护理.
- 多系统功能体征 (FSS) 是一个复杂的领域,具有多样化的患者和专业观点.
研究的目的:
- 开发与治疗相关的和广泛接受的FSS解释.
- 为了弥合患者和医疗保健专业人员之间的认识学差距.
- 通过参与式方法创建一个共同设计的症状解释框架.
主要方法:
- 一个参与式设计项目,涉及知识合作伙伴:患有FSS的患者,医疗保健专业人员,研究人员,翻译人员和设计师.
- 代对话和共同创造以开发解释.
- 考虑本体学,科学和临床连贯性,代理,时间性,叙事,互联网影响和个性化.
主要成果:
- 由此产生的框架包含28个广泛相关,可接受和可用的FSS解释.
- 解释整合了来自欧洲各地患者,医疗保健专业人员和研究人员的观点.
- 该框架可在www.bodysymptoms.org开放访问,包括可操作的健康建议.
结论:
- 共同设计的解释可以为理解像FSS这样的复杂症状提供一个共享的框架.
- 开发的框架通过向患者提供可访问的,多视角的解释来解决解释学不公正的问题.
- 这种方法为在有争议的医疗保健领域的协作知识创造提供了一个模型.
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