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炎症性肠道疾病的中国患者的自我管理经验:患者的观点
Yunrong Zheng1, Tianrong Zhu1,2, Danling Zhu1
1School of Nursing, Zhejiang Chinese Medical University, Hangzhou, China.
Medicine
|September 24, 2025
概括
中国炎症性肠病 (IBD) 患者随着时间的推移发展出自我管理技能,从最初的无意识转向积极管理他们的病情. 根据疾病阶段量身定制的有效自我管理教育对于改善患者福祉至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 健康心理学 心理健康心理学
- 定性研究是指质量研究.
背景情况:
- 炎症性肠病 (IBD) 是一种慢性,无法治愈的疾病,需要有效的自我管理,以确保患者的福祉.
- 关于东亚人口的IBD自我管理经验,存在很大的研究差距.
- 了解中国IBD患者的观点对于文化相关的医疗保健至关重要.
研究的目的:
- 探索被诊断患有炎症性肠病 (IBD) 的中国患者的自我管理经验.
- 在中国人中确定IBD自我管理的关键主题和发展阶段.
主要方法:
- 描述性的定性研究设计.
- 在江省杭州进行有目的采样,采用最大变异策略.
- 与27名IBD患者进行半结构面试,使用传统内容分析进行分析.
主要成果:
- 出现了三个核心主题:自我管理意识 (源于缺乏对终身技能的感知需求),自我管理实践 (包括药物,日常生活,情感和职业管理),以及自我管理反思 (患者作为"半医生"和"同志"与专家).
- 自主管理能力随着疾病的经验而进步,并发症出现后往往会增加.
- 最初的意识很低,但患者通过生活经验发展出更大的能力.
结论:
- 患者的自我管理能力与他们的疾病旅程和生活经验密切相关.
- 个性化自我管理教育和支持是必不可少的,根据不同疾病阶段量身定制.
- 动员家庭和社会支持系统可以显著提高患者自我管理的努力.
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