对于多发性硬化症的YouTube运动视频的内容质量和可靠性
Humeyra Kiloatar1, Cimen Olcay Demir1, Nisa Turutgen1
1Department of Physiotherapy and Rehabilitation, Faculty of Health Science, Kutahya Health Sciences University, Campus of Germiyan 43100 Kutahya, Türkiye.
Multiple sclerosis and related disorders
|September 24, 2025
概括
YouTube为多发性硬化症 (MS) 患者提供炼视频,但质量差异很大. 优先考虑专业的,基于证据的内容,以获得安全有效的炼指导.
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 数字健康数字健康
背景情况:
- 运动是改善多发性硬化症 (MS) 患者身体功能和生活质量的关键非药物治疗方法.
- YouTube是获取健康信息的普遍平台,包括运动指导.
- 在YouTube上为MS患者提供运动内容的质量和可靠性需要评估.
研究的目的:
- 评估YouTube视频的内容质量和可靠性,为患有多发性硬化症的人提供运动指导.
- 分析与MS运动内容相关的视频特征和上传器类型.
主要方法:
- 一个系统的搜索确定了95个相关的YouTube视频多发性硬化症 (MS) 运动.
- 使用mDISCERN,全球质量评分 (GQS) 和JAMA基准来评估内容质量.
- 记录了视频特征,如持续时间,浏览次数和上传者类型.
主要成果:
- 45%的视频质量高,37%的视频质量中等,18%的视频质量低.
- 商业账户是最常见的上传者,其次是非营利组织和理疗师.
- 在质量组中观察到质量得分 (mDISCERN,JAMA) 的显著差异 (p < 0.001,p = 0.008).
结论:
- YouTube为MS提供了可访问的炼内容,但质量不一致.
- 非专家上传和质量变化的内容可能会对电子健康素养较低的人构成风险.
- 高质量的,专业的,以证据为基础的内容对于安全有效的MS运动计划至关重要.
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