系统查晚期癌症患者的治愈能力感知:一个纵向分析
Kayley M Ancy1, Grecia Aldana Singleton1, Yi Huang2
1Department of Palliative, Rehabilitation and Integrative Medicine (K.M.A., G.A.S., D.S.Z., Y.H., E.B., D.H.), The University of Texas MD Anderson Cancer Center, Houston, Texas, USA.
Journal of pain and symptom management
|September 24, 2025
概括
只有三分之一的晚期癌症患者准确地了解他们的治愈能力,随着时间的推移而变化最小. 系统的查可以帮助识别和解决患者信息需求,以更好地应对.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 健康心理学 心理健康心理学
背景情况:
- 对疾病理解的系统选是一种创新的方法,可以使有关敏感话题的讨论正常化.
- 这种方法有助于识别未得到满足的信息需求的患者,特别是在先进的癌症治疗中.
- 对可治愈性的准确感知对于患者的决策和心理健康至关重要.
研究的目的:
- 评估随着时间的推移,晚期癌症患者对治愈能力的看法发生的变化.
- 确定与这种患者群体中可治愈性的误解相关的预测因素.
主要方法:
- 使用预后和治疗感知问卷实施了对疾病理解的通用电子系统查.
- 从432名患有晚期固体瘤的患者的数据,包括初始咨询和一年内至少一次随访,被追溯审查.
- 多变量分析被用来确定对可治愈性的不准确感知的预测因素.
主要成果:
- 在初次和随访时,分别只有34.0%和36.8%的患者准确地感知到他们的治愈能力 (P=0.3).
- 不准确的感知与亚洲种族 (OR=3.08),更大的幸福感 (OR=0.83),更好的睡眠 (OR=0.89),以及较低的疲劳,抑郁,焦虑和财务困境有关.
- 在初次和后续访问之间没有观察到对可治愈性的准确感知有显著的改善.
结论:
- 大多数晚期癌症患者缺乏对其治愈能力的准确理解,随着时间的推移观察到的变化很小.
- 系统查提供了一个宝贵的机会,以提高患者对疾病的理解.
- 通过系统查来改善疾病的理解,可能会增强应对机制和支持性护理.
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