在发育研究中尊重儿童机构:最佳实践,应用和见解
Amanda N Howery1,2, Olivia J Lashley1,2, Hanna R Wright1,2
1Department of Psychiatry Oregon Health & Science University, Portland, OR, 97239, United States.
概括
儿科研究人员应通过适当的同意程序让儿童参与研究. 这增强了儿童代理权,提高了数据质量,并维护了年轻参与者的伦理研究实践.
科学领域:
- 儿童发展 儿童发展
- 儿科研究伦理 儿科研究伦理
- 研究方法研究方法研究方法学
背景情况:
- 儿科研究需要知情同意,但让幼儿参与决策至关重要.
- 纵向研究需要根据儿童的理解发展而调整同意程序.
- 在研究中实施有效的儿童同意策略的资源有限.
研究的目的:
- 描述在儿科研究中促进儿童主动性的方法.
- 为研究人员提供关于儿童同意和决策的全面资源.
- 为儿童参与者增强积极和尊重的研究经验.
主要方法:
- 描述从纵向照顾者-婴儿研究 (怀孕到5岁) 的方法.
- 将基于艺术的研究中的观察结果纳入其中,以增强5-10岁儿童的代理能力.
- 基于发展里程碑和评估异见的程序修改的详细策略.
主要成果:
- 确定和合成了促进儿童行动的方法.
- 详细介绍了评估和应对儿童异议的策略.
- 为儿科研究人员开发了一个全面的资源.
结论:
- 实施适合发展的同意程序可以提高数据质量和数据保留.
- 在研究中促进儿童主动性维护道德标准,并支持健康的儿童发展.
- 这项工作有助于更广泛的学术对话儿童代理.
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