由中风幸存者经营的在线同行支持小组共有什么? 一项探索性研究,采用参与式方法
Malin Tistad1,2, Lill Hultman1,3,4, Jeanette Nelson1
1Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
概括
卒中幸存者在在线Facebook群体中找到有价值的同行支持,分享各种经验和挑战. 这些团体提供了一个相互理解和知识交流的空间,帮助恢复和日常生活导航.
科学领域:
- 社会科学 社会科学 社会科学
- 健康科学 卫生科学 卫生科学
- 康复医学 康复医学 康复医学
背景情况:
- 卒中幸存者经常经历终身残疾影响他们的生活和他们的亲人.
- 在线社交媒体团体为有共同经验的个人提供同行支持.
- 关于中风幸存者发起和管理的在线同行支持小组的研究有限.
研究的目的:
- 探索和描述的内容共享在帖子和评论在一个Facebook群体内,对于中风幸存者.
- 了解中风幸存者在自主启动和管理的在线社区中的同行支持动态.
主要方法:
- 一项定性,探索性研究,涉及中风幸存者作为共同研究人员.
- 从一个Facebook群组收集了超过3个月的数据,分析了帖子和评论.
- 对收集的数据应用了诱导性定性内容分析.
主要成果:
- 五个类别和11个子类别出现了,详细介绍了成员的经验.
- 关键主题包括驾每日生活中的中风后果,情绪上的扎,进步,社会导航,以及中风后继续生活.
- 讨论包括挑战,日常情况,以及对同行经验的要求.
结论:
- 在线论坛促进了与中风幸存者及其重要的人有关的广泛讨论.
- 同行对同行在线支持为分享经验,知识和发展体验知识提供了有价值的背景.
- 康复专业人员可以促进在线同行团体,评估社交媒体的使用情况,并支持幸存者利用这些平台.
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