在健康数据共享中导航隐私:以患者为中心的健康信息交换方法
Joanna L Seeley1, Donna G Curtis Maillet1, Sarah Balcom1
1University of New Brunswick, Fredericton, New Brunswick, Canada.
Healthcare management forum
|September 26, 2025
概括
患者支持共享个人健康信息 (PHI) 为健康信息交换 (HIE),如果有隐私保护措施. 这项研究为以患者为中心的PHI共享框架提供了见解,以提高患者安全.
科学领域:
- 医疗信息学 医疗信息学
- 患者安全 患者安全
- 定性研究是指质量研究.
背景情况:
- 加拿大的健康信息交换 (HIE) 可以提高患者的安全.
- 对HIE的障碍包括与个人健康信息 (PHI) 共享有关的隐私问题.
- 并非所有加拿大省和地区都与国家系统共享安全事件的PHI.
研究的目的:
- 探索患者和家庭对PHI分享的态度.
- 调查关于PHI在患者安全事件中的二次使用的观点.
主要方法:
- 探索性的定性研究设计.
- 检查了患者和家庭对PHI共享的态度.
- 专注于用于患者安全的二次数据的使用.
主要成果:
- 当隐私保护措施存在时,参与者表示支持HIE.
- 关键的保障措施包括定义的共享目的和匿名数据格式.
- 当保证隐私时,不愿意分享PHI并不是主要关注的问题.
结论:
- 通过强有力的隐私措施,可以实现对HIE的患者和家庭支持.
- 这些发现为开发以患者为中心的PHI共享框架提供了机会.
- 实施这些框架可以通过改进HIE来提高患者安全.
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