眼睛黑色素瘤的患者体验:一个解释性的描述
Jennifer M L Stephens1, Chenoa Williams2
1Assistant Professor, Fay W. Whitney School of Nursing, University of Wyoming, Laramie, WY, USA.
Journal of patient experience
|September 26, 2025
概括
眼睛黑色素瘤 (OM) 患者经历了一子的癌症旅程,通常不被医疗保健提供者承认. 提高认可对于更好的以患者为中心的护理和福祉至关重要.
科学领域:
- 在瘤学瘤学.
- 眼科医生 眼科 眼科
- 定性研究是指质量研究.
背景情况:
- 眼睛黑色素瘤 (OM) 是一种罕见的癌症.
- 人们对OM的患者体验还不太清楚.
研究的目的:
- 探索被诊断患有眼球黑色素瘤的个人的生活经历.
- 了解OM患者的挑战和需求.
主要方法:
- 使用解释性描述进行定性研究.
- 通过采访 (N=9) 和焦点小组 (n=7) 收集的数据.
- 数据使用WORD,EXCEL和NVIVO进行分析,并遵循COREQ的指导方针.
主要成果:
- 三个关键主题出现了:纠的自我,生存的危险,和自我倡导.
- 参与者描述了诊断,治疗和严重的视力丧失.
- OM被认为是终身的癌症经历,往往被医疗保健提供者忽视.
结论:
- 医疗保健提供者需要认识到OM作为正在进行的癌症生存问题.
- 改进的认知可以导致更好的以患者为中心的护理.
- 对OM患者来说,解决生理和心理需求至关重要.
更多相关视频
06:15Author Spotlight: Anterior HR-OCT as a Non-Invasive Tool for Characterizing Ocular Surface Squamous Neoplasia
Published on: August 9, 2024
1.8K
10:14Author Spotlight: Ex Vivo OCT-Based Multimodal Imaging of Human Donor Eyes for Research into Age-Related Macular Degeneration
Published on: May 26, 2023
4.1K
相关概念视频
Skin Cancer
5.7K
Skin cancer is a type of cancer that occurs when there is an abnormal growth of skin cells, usually triggered by damage to the DNA within the skin cells. It is primarily caused by exposure to ultraviolet (UV) radiation from the sun or artificial sources like tanning beds. Skin cancer is the most common type of cancer worldwide, and its incidence continues to rise.
Basal Cell Carcinoma (BCC): BCC is the most common type of skin cancer, accounting for about 80% of cases. It typically develops in...
Basal Cell Carcinoma (BCC): BCC is the most common type of skin cancer, accounting for about 80% of cases. It typically develops in...
5.7K
Glaucoma: Overview
1.2K
Glaucoma is an eye condition characterized by increased intraocular pressure that damages the retina and optic nerve, leading to irreversible blindness if left untreated. The human eye has various components, including the cornea, iris, pupil, lens, and optic nerve. Aqueous humor is secreted by the epithelium of the ciliary body in the posterior chamber and flows through the trabecular meshwork and canal of Schlemm, maintaining normal intraocular pressure. The trabecular meshwork and the canal...
1.2K
Open Angle Glaucoma: Treatment
963
In open-angle glaucoma, the iridocorneal angle remains open, but the trabecular meshwork becomes stiff, slowing down the outflow of aqueous humor. This causes a buildup of aqueous humor in the anterior chamber, leading to a sudden increase in intraocular pressure. The treatment for open-angle glaucoma focuses on reducing the elevated intraocular pressure by either decreasing the secretion of aqueous humor or increasing its outflow.
Drugs such as carbonic anhydrase inhibitors, α2- and...
Drugs such as carbonic anhydrase inhibitors, α2- and...
963
