与健康相关的生活质量,疾病感知,血液病患者的耻辱化和乐观:两个探索性路径模型
Hedvig Kiss1, Vanessa Müller1, Kristóf Tamás Dani2
1Department of Behavioral Sciences, Albert Szent-Györgyi Medical School, University of Szeged, 6722 Szeged, Hungary.
Medicina (Kaunas, Lithuania)
|September 27, 2025
概括
疾病感知和情绪功能显著影响血液病患者的身体和社会功能. 乐观在缓解这些对生活质量影响方面发挥着关键作用.
科学领域:
- 血液学 血液学 血液学
- 心理学 心理学 心理学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 血液学疾病导致显著的身体和社会障碍.
- 疾病的感知,情感功能,耻辱和乐观影响患者的结果.
- 这些因素对健康相关生活质量的综合影响尚不清楚.
研究的目的:
- 研究血液病患者的疾病感知,情绪功能,耻辱和乐观对身体和社会功能之间的直接和间接联系.
- 探索乐观主义在这些关系中的调节作用.
主要方法:
- 96名血液病患者完成了验证的调查问卷,评估了生活质量,疾病感知,耻辱和乐观.
- 用描述性统计,相关性和路径分析来分析数据.
主要成果:
- 负面的疾病感知通过角色和认知功能间接损害了身体功能.
- 情绪功能通过疾病感知和污名化间接影响了社会功能,这种感觉被乐观主义所调节.
- 疾病感知直接预测了身体功能,情绪功能直接预测了社会功能.
结论:
- 疾病感知和情绪功能是血液病患者身体和社会功能的关键决定因素.
- 乐观会缓和这些心理因素与患者功能之间的关系.
- 支持性护理应专注于增强疾病感知,情感福祉,培养乐观以改善生活质量.
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