分享和重复使用心理健康研究数据:引入HeSANDA心理健康节点
Alison R Yung1,2,3, Nemanja Zivanov1, Marko Milicevic1
1Institute of Mental and Physical Health and Clinical Translation (IMPACT), Deakin University, Geelong, VIC, Australia.
概括
数据共享,使无身份参与者数据可用,加速科学发现和完整性. 心理健康节点倡议促进初级和二级研究人员之间的伦理数据共享.
科学领域:
- 心理健康研究 心理健康研究
- 数据科学数据科学数据科学
- 公共卫生 公共卫生
背景情况:
- 数据共享提高了研究完整性,加速了知识创造,并最大限度地提高了参与者的贡献.
- 公众和参与者对数据共享的支持是显而易见的,但由于访问,伦理和治理方面的担忧,初级研究人员可能会犹.
研究的目的:
- 描述澳大利亚倡议的心理健康节点.
- 促进精神健康研究中的伦理数据共享.
- 促进初级和二级研究人员之间的合作.
主要方法:
- 心理健康节点与初级研究人员 (原始数据创建者) 和二级研究人员 (数据再使用者) 进行接触.
- 专注于促进道德数据共享实践.
- 为良好实践制定建议和资源.
主要成果:
- 心理健康节点旨在提高心理健康数据的可用性和伦理使用.
- 它解决了主要研究人员和参与者隐私的担忧.
- 促进协作以最大限度地提高数据价值.
结论:
- 初级和二级研究人员之间的合作是最大限度地提高数据价值的关键.
- 伦理考虑和对初级研究人员的尊重至关重要.
- 提供了建议和资源,以指导良好数据共享实践.
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