父母对儿童喘护理成本对话的看法:从定性访谈研究中得出的结论
Jennifer A Heisler-MacKinnon1, Wei Yi Kong2, Kathryn L Kennedy3
1Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, NC 27514, USA; Department of Health Behavior, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, NC 27599-7440, USA.
Patient education and counseling
|September 28, 2025
概括
父母希望儿科喘护理团队在例行访问期间公开讨论医疗费用. 整合这些对话可以减少家庭在昂贵的喘治疗中面临的财务负担和耻辱感.
科学领域:
- 儿科医疗保健经济学
- 患者的财务倡导 患者的财务倡导
- 喘管理的管理
背景情况:
- 儿童喘护理涉及家庭的重大财务负担.
- 喘护理团队处于一个独特的位置,可以帮助家长进行成本导航.
- 对于专科诊所如何解决家长的成本问题,人们的理解有限.
研究的目的:
- 探索家长和喘护理团队如何讨论医疗保健费用.
- 了解父母对成本对话的偏好.
- 为旨在减少儿科喘护理财务负担的干预措施提供信息.
主要方法:
- 涉及21名患有喘的家长的定性研究.关心喘护理成本.
- 从一个大型儿科喘专科诊所招聘.
- 专题分析以确定家长的经验和偏好.
主要成果:
- 父母报告了各种直接和间接的喘护理费用,商业保险儿童面临更高的直接费用.
- 父母希望定期讨论成本,以减轻对负担能力的耻辱和假设.
- 成本谈话不一致;当它们发生时,护理团队通常会确定节省成本的措施.
- 大多数家长认为,增强成本信息将有利于家庭和护理团队.
- 父母对在孩子面前讨论费用的看法各不相同.
结论:
- 喘护理团队可以通过将成本讨论纳入常规护理来消除财务担忧.
- 家长希望护理团队定期启动费用对话,尊重隐私偏好.
- 为了有效的父母和护理团队参与,需要增加有关成本和资源的信息.
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