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[纤维肌痛和炎症性类风湿性疾病诊断的护理途径:使用比较混合方法研究的以患者为中心的方法]

Magda Harim¹, Alexandra Kachaner², Alice Combier³

¹SAMU - SMUR, hôpital Henri-Mondor, Assistance publique-Hôpitaux de Paris, Paris, France.

La Revue de medecine interne

|October 1, 2025

概括

与风湿性疾病相比,患有纤维肌痛的患者经历了更长的诊断延迟和紧张的医生患者关系. 两组人都报告说,他们的疼痛往往没有得到医疗专业人员的充分承认或理解.

科学领域:

类风湿病学类风湿病学
患者体验患者体验
医疗保健的不平等医疗保健的不平等

背景情况:

医生经常发现纤维肌痛 (FM) 与定义精确的类风湿性疾病相比具有挑战性.
对于FM和其他类风湿病的患者护理途径有很大的差异.
了解患者体验对于改善医疗保健至关重要.

研究的目的:

为了比较纤维肌痛 (FM) 患者的医疗护理途径和患者经验,与那些有明确的类风湿性疾病的人相比.
为了确定诊断时间表和患者-提供者互动的关键差异.

主要方法:

未来从第三级门诊中心招募患有FM,脊椎关节炎 (SpA) 或类风湿性关节炎 (RA) 的患者.
半结构面试,以收集患者的定性经验.
医学途径特征的定量分析和患者旅程的定性探索.

主要成果:

患有FM的患者面临的诊断延迟时间比患有风湿性疾病的患者长7倍.
FM 患者报告医疗保健利用率更高,对日常生活产生更深远的影响.
相当数量的患者,特别是患有肌痛性肌痛的患者,经历了缺乏疼痛可信度和医生患者关系的改变,包括被拒绝的感觉和需要专注地倾听.

结论:

纤维肌痛与长时间的诊断延迟和缺乏认可有关,这会对医生与患者的关系产生负面影响.
患有不明原因疼痛的患者,无论诊断如何,往往都觉得他们的症状没有得到充分考虑.
解决患者报告的结果和改善沟通对于改善FM和其他类风湿病的护理至关重要.

关键词:

慢性疼痛是一种慢性疼痛.延迟诊断的时间延迟.慢性疼痛是一种慢性疼痛.纤维肌痛是一种纤维肌痛.纤维肌痛是一种纤维肌痛.医生与患者之间的关系医生与病人之间的关系迟缓诊断迟缓是一个问题.

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