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针对炎症性肠病患者的基于用户需求的应用程序:开发和可用性研究
Mijeong Park1,2, Jisan Lee3, Jae Hee Cheon4
1Department of Nursing Science, Kyunghee University, 26 Kyungheedae-Ro, Dongdaemun-Gu, Seoul, 02447, Republic of Korea.
BMC health services research
|October 2, 2025
概括
一个新的移动应用程序,WITH-Jang,使炎症性肠病 (IBD) 患者能够有效地管理他们的健康. 这个数字工具增强了自我监测和与医疗保健提供者的沟通,以更好地管理慢性疾病.
科学领域:
- 数字健康数字健康
- 移动健康应用 移动健康应用
- 慢性疾病管理 慢性疾病管理
背景情况:
- 移动应用程序对于管理慢性疾病,如炎症性肠病 (IBD) 至关重要.
- IBD需要终身管理,应用程序可以帮助自我监测和共享决策.
- 数字医疗保健解决方案正在不断发展,以支持患有罕见慢性疾病的患者.
研究的目的:
- 为炎症性肠病 (IBD) 患者开发一个专门的数字医疗应用程序.
- 增强患者的自我管理能力,改善与医疗保健提供者的沟通.
- 通过严格的测试和患者反来评估应用程序的可用性.
主要方法:
- 根据患者需求和专家意见设计了六个核心功能.
- 开发并测试了一个原型应用程序"WITH-Jang",包括其架构和界面.
- 与专家进行了启发性评估,并与IBD患者进行了可用性测试,随后进行了焦点小组.
主要成果:
- 核心功能包括个性化健康总结,症状跟踪和使用患者报告结果监测药物坚持.
- 开发了一个原型"WITH-Jang",并集成了关键功能.
- 使用15名专家和20名IBD患者的可用性测试告知了应用程序的改进,导致简化了用户界面,并为1.0.0版本更新了"我的健康摘要".
结论:
- 该WITH-Jang应用程序为IBD患者提供了主动的自我健康管理.
- 它可视化关键的症状和药物数据,改善患者-提供者沟通.
- 该应用程序支持个性化护理和共享决策,在慢性疾病管理中非常有价值.
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