母亲为深度智力和多重残疾儿童提供复杂的家庭护理的经验:现象学研究
1Faculty of Nursing, Kansai Medical University, Hirakata, Japan.
Creative nursing
|October 3, 2025
概括
患有深度智力和多重残疾 (PIMD) 的孩子的父母强调个性化,专注的照顾,促进自决. 他们警告不要过分强调医疗专业知识,主张承认护理是默认的知识.
科学领域:
- 儿科护理 儿科护理
- 关于残疾人的研究.
- 定性研究是指质量研究.
背景情况:
- 父母的照顾对于患有深度智力和多重残疾 (PIMD) 的孩子来说至关重要.
- 父母护理实践往往是医疗保健专业人员理解或复制的挑战.
- 了解父母照顾的基础对于改善支持至关重要.
研究的目的:
- 阐明有PIMD儿童的父母所经历的照顾的核心原则.
- 确定有效照顾有复杂需求的儿童的基本要素.
主要方法:
- 雇佣了五位患有PIMD儿童的母亲进行的非结构化采访.
- 利用现象学方法进行深入的数据分析.
主要成果:
- 母亲们强调了通过真诚和响应性的照顾来培养孩子的自决的重要性.
- 母亲们表示担心,对医学知识的强烈关注可能会掩盖孩子的个性.
- 发现PIMD中缺乏普遍的护理定义.
结论:
- 对患有PIMD儿童的照顾本质上是个性化的,并深深植根于父母的经验中.
- 通过实践照顾获得的默契知识是经常被忽视的重要组成部分.
- 护理实践和培训应该整合这些个性化,默认的护理知识方面.
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