有意义的公众参与:改变研究机构向认识论的正义
Tomasz Krawczyk1,2,3, Jan Piasecki1, Jacqueline Galica4,5
1Department of Bioethics and Health Psychology, Faculty of Health Sciences, Jagiellonian University Medical College, Krakow, Poland.
Frontiers in public health
|October 6, 2025
概括
研究机构需要培养包容性文化,以支持有意义的公众和患者参与和参与 (PPIE). 这包括认识到各种知识形式,并为研究人员和公众创造协作空间.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 科学社会学科学社会学
- 研究伦理学研究伦理学
背景情况:
- 公众和患者参与和参与 (PPIE) 在研究中越来越多地被授权.
- 在创造和维持有意义的PPIE条件方面存在挑战.
- 对PPIE的机构支持往往被忽视.
研究的目的:
- 提出制度变革的框架,以促进有意义的PPIE.
- 探索PPIE的社会文化和认识学方面.
- 解决与研究中低估公众知识相关的风险.
主要方法:
- 基于"变化顺序"模型的概念框架开发.
- 强调"第三级变化"以提高对各种知识形式的认识.
- 探索机构文化和对公众参与的态度.
主要成果:
- 提出了一个机构变革的框架,重点关注PPIE的社会文化和认识特征.
- 承认公众成员是有效知识的持有者至关重要.
- "第三阶段变化"对于维持PPIE作为一个协作知识空间至关重要.
结论:
- 为了有效的PPIE,需要进行全面的制度变革.
- 培养一个尊重多元知识的环境,增强了研究伦理.
- 概述了实施制度变革的实际例子和未来方向.
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