解决成人罕见先天性疾病的息护理缺口:以CM-AVM2为例

Matthew W Kenaston1, Ryan Baldeo2, Tyler K Murphy2

  • 1Mayo Clinic Alix School of Medicine (M.W.K.), Phoenix, Arizona, USA.

概括

在标准治疗失败时,息护理可以显著改善患有罕见血管疾病的患者的生活质量,例如毛细血管形-动脉静脉形2型 (CM-AVM2). 这一案例凸显了它在症状管理和护理讨论的目标方面的关键作用.

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