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让患有慢性疾病的青少年参与患者教育:青少年的感知
Marie-Paule Morin1, Aimun Qadeer Shah2, Marie-Pascale Pomey3
1CHU Sainte-Justine, Université de Montreal, Montreal, Quebec, Canada.
Journal of evaluation in clinical practice
|October 7, 2025
概括
患有青少年异常性关节炎 (JIA) 的青少年热衷于教育医学学生关于肌肉骨 (MSK) 考试的知识. 他们的实践经验对于提高临床技能和以患者为中心的护理是有价值的.
科学领域:
- 医学教育 医学教育
- 类风湿病学 类风湿病学
- 青少年健康 青少年健康
背景情况:
- 肌肉骨 (MSK) 疾病导致严重的全球残疾.
- 医疗教育中存在一个关于MSK体检的差距.
- 成年患者教育者提高了临床技能,但青少年的观点未得到充分研究.
研究的目的:
- 探讨青少年 (13-18岁) 患有青少年异常性关节炎 (JIA) 的看法,以了解他们作为MSK考试的患者教育者的角色.
- 为教育计划的发展提供信息,将青少年与JIA整合起来.
- 了解青少年如何看待他们对医学培训的潜在贡献.
主要方法:
- 对被诊断患有JIA的青少年进行了19次半结构面试.
- 在加拿大两个儿科中心进行了采访.
- 用主题内容分析分析了成绩单.
主要成果:
- 青少年对患者教育表达了普遍的热情.
- 参与者认识到他们在培训医疗学员方面的实践经验的价值.
- 青少年认为有潜力为适合年龄,以患者为中心的护理做出贡献.
结论:
- 了解青少年的看法对于有效的医学教育计划开发至关重要.
- 整合青少年的经验可以增强MSK考试培训.
- 未来的计划应该考虑青少年作为有价值的患者教育者.
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