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在患有黑色素瘤的患者的整个旅程中弥合差距:系统性审查
Adil Amarsi1, Joy Xu2, Josh Chan3
1Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.
Melanoma management
|October 7, 2025
概括
黑色素瘤患者面临重大的医疗保健障碍,影响他们的生活质量. 本次审查确定了诊断,治疗和社会因素的关键挑战,以指导患者护理和结果的改进.
科学领域:
- 在瘤学瘤学.
- 皮肤病学 皮肤病学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 黑色素瘤是一个日益增长的全球健康挑战,发病率和死亡率不断增加.
- 患者从诊断到治疗的旅程往往以焦虑,症状负担和信息获取不足为标志,这会对健康结果产生负面影响.
研究的目的:
- 系统地审查和分析黑色素瘤患者在整个医疗连续过程中遇到的主要障碍.
- 识别黑色素瘤患者所经历的知识差距和护理障碍.
主要方法:
- 在主要数据库 (PubMed,Scopus,Web of Science,Embase,Cochrane Library) 进行了全面的文献搜索,并通过手动搜索进行了补充.
- 包括的研究重点关注黑色素瘤患者的经验,护理障碍,并在2013-2023年期间以英语出版.
- 使用推评估,开发和评估 (GRADE) 标准对方法质量进行了评估.
主要成果:
- 在被选的2,257篇文章中,包括了183篇,揭示了关键主题:交叉性,治疗,诊断/预后和患者/社会负担.
- 通常识别的子类别包括自我检查,理解风险因素和评估药物疗效的挑战.
- 在黑色素瘤患者的医疗保健旅程中发现了显著的差距.
结论:
- 黑色素瘤患者在整个医疗保健经验中遇到重大障碍.
- 解决这些发现的差距对于改善当前的做法至关重要.
- 开发有针对性的干预措施对于改善患者体验和黑色素瘤患者的整体生活质量至关重要.
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