确定青少年和年轻成年黑色素瘤患者的护理缺口和需求
Reece Moore1, Nabeel Ahmad2, Miriam Kadosh3
1McGovern Medical School, The University of Texas Health Science Center at Houston, Houston, TX, USA.
概括
患有黑色素瘤的青少年和年轻人 (AYA) 具有独特的需求,这些需求因性别,治疗阶段和治疗类型而异. 解决这些特定需求对于改善黑色素瘤治疗期间和之后的护理至关重要.
科学领域:
- 在瘤学瘤学.
- 青少年医学 青少年医学
- 心理社会瘤学
背景情况:
- 15-39岁的青少年和年轻人 (AYA) 患有黑色素瘤面临着影响发展里程碑的独特挑战.
- 了解这些独特的需求对于定制支持性护理策略至关重要.
研究的目的:
- 评估AYA黑色素瘤患者的特定需求.
- 根据人口统计和治疗相关因素,使用需求评估和服务桥梁 (NA-SB) 调查问卷来确定需求的变化.
主要方法:
- 基于AYA NA-SB问卷的REDCap调查分发给了152名AYA黑色素瘤患者.
- 在2024年8月至10月期间收集和分析了数据.
- 分析根据性别,治疗阶段和暴露于免疫检查点阻塞剂 (ICBs) 的需求进行了检查.
主要成果:
- 在男性和女性AYA之间观察到需要的显著差异,包括遗传学,性副作用和疾病状况的理解.
- 接受积极治疗的AYA报告说,与完成治疗的人相比,他们对应对,情绪管理和工作与生活平衡的需求更大.
- 用ICB治疗的患者表达了更高的需要来管理长期副作用,疼痛和物理治疗效应.
结论:
- AYA黑色素瘤患者表现出独特的需求,受性别,治疗阶段和全身治疗类型的影响.
- 积极评估患者需求,并与支持性服务联系,可以在黑色素瘤治疗期间和之后解决挑战.
- 个性化护理策略对于优化这一群体的结果至关重要.
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