为父母患有癌症的孩子开发支持计划:使用德尔菲方法的专家共识
Maïté Vandooren1, Clarisse Dibao-Dina2,3, Emmanuel Gyan4,5,6
1Faculty of Medicine, Family Medicine Department, University of Limoges, Limoges, France.
Clinical child psychology and psychiatry
|October 8, 2025
概括
患有父母癌症的年轻照顾者可能面临重大负担. 这项研究开发了一个结构化的支持计划,使用专家的共识来解决他们的身体和心理需求,旨在改善护理和福祉.
科学领域:
- 儿科瘤学 儿科瘤学
- 家庭医学 家庭医学 家庭医学
- 心理学 心理学 心理学
背景情况:
- 父母癌症显著影响家庭动态,往往导致儿童的照顾者负担.
- 年轻的护理人员经历身体和心理症状,有有限的支持计划可用.
- 法国现有的支持主要由讨论小组组成.
研究的目的:
- 为癌症患者的年轻未成年照顾者制定一个结构化的支持计划.
- 通过专家的意见,就计划的结构,内容和交付达成共识.
主要方法:
- 系统的文献审查,以确定支持计划的相关项目.
- 德尔菲方法涉及14名医疗保健专家 (全科医生,瘤学家,心理学家,护士) 在四轮.
- 在方案细节 (会议号,时间,内容,所需的专业人员) 上达成共识,使用>70%的协议门.
主要成果:
- 文献审查确定了57个相关项目.
- 在四轮Delphi会议之后,所有评估项目都达到了专家的共识.
- 关键程序参数,包括会议结构和人员配置,通过专家协议来定义.
结论:
- 已经建立了一个基于共识的框架,用于为癌症患者的年轻护理人员提供支持计划.
- 这种结构化的方法为实施和评估有效的支持干预提供了基础.
- 进一步的研究将重点关注开发计划的现实世界实施和影响评估.
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