识别适应需求的决策辅助老年拉丁裔成年人的晚期CKD:一个定性研究
Thalia Porteny1, Kristen Kennefick2, Hillary Matos2
1Department of Health Policy and Management, Mailman School of Public Health, Columbia University, New York; Robert N. Butler Columbia Center for Aging, New York.
概括
这项研究发现,对于晚期慢性病 (CKD) 的老拉丁裔成年人来说,西班牙用于替代疗法的决策辅助是可以接受的和可访问的. 需要进行调整,以改善其使用并确保对文化敏感的护理.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 老年学是一门学科.
- 健康 公平 卫生 公平
背景情况:
- 老年拉丁裔成年人面临衰竭的高负担,是美国增长最快的少数群体.
- 决策辅助器提高了慢性病 (CKD) 的老年人护理质量.
- 现有的替代疗法决策辅助器缺乏适应老年拉丁裔成人晚期CKD.
研究的目的:
- 评估治疗决策辅助器 (DART-S) 的西班牙语版本的可接受性和可访问性.
- 确定对DART-S进行必要的调整,以促进其在晚年拉丁裔成人中使用.
主要方法:
- 使用焦点小组和与西班牙语患者和护理合作伙伴进行结构化采访的定性研究.
- 共享决策技术框架的文化定位和定制的应用.
- 对建议的调整进行主题分析.
主要成果:
- 西班牙治疗决策辅助器 (DART-S) 被发现是可接受的,并可访问的参与者.
- 关键的适应包括结合生活经验,患者证词和解决心理健康影响.
- 参与者希望对预后信息进行敏感的沟通,以及针对财务,营养和生活方式因素的量身定制信息.
结论:
- 定位和定制决策辅助工具对于目标一致,以人为中心的老年拉丁裔成年人患有晚期CKD的护理至关重要.
- 未来的研究应该评估适应的DART-S在改善拉丁裔患者的知识和决策质量的有效性.
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