在养育有自闭症谱系障碍的孩子时,父母的生活质量:一个叙事回顾
A Veseli1, S Mrasori2, I Čuković-Bagić3
11Department of Periodontology and Oral Medicine, Alma Mater Europaea - Campus College Rezonanca, Prishtina, Kosovo; 2School of Dental Medicine, University of Zagreb, Croatia.
Georgian medical news
|October 10, 2025
概括
照顾患有自闭症谱系障碍 (ASD) 的孩子显著影响父母的生活质量 (QoL). 结合教育,指导和适应环境的干预措施可以改善这些护理人员的QoL.
科学领域:
- 神经发育障碍 神经发育障碍
- 护理人员健康 护理人员健康
- 家庭研究 家庭研究
背景情况:
- 养育患有自闭症谱系障碍 (ASD) 的孩子带来了独特的挑战,影响了父母的生活质量 (QoL).
- 照顾孩子的需求会影响父母的身体,社会和心理健康.
- 了解这些影响对于制定有效的支持策略至关重要.
研究的目的:
- 审查现有的关于照顾患有自闭症儿童如何影响父母生活质量的研究.
- 找出切实可行的策略来减轻父母的照顾负担.
- 综合发现,以便全面了解ASD中家长的QOL.
主要方法:
- 一篇关于2010年1月至2024年5月期间发表的研究的叙述性综述.
- 在PubMed和Scopus中使用关键词进行的搜索:"自闭症"",护理人员"和"生活质量".
- 包括专注于患有自闭症儿童 (≤18岁) 的父母的经验研究和系统审查.
主要成果:
- 与典型发育儿童的父母相比,患有自闭症儿童的父母始终报告总体和特定领域的质量水平较低.
- 负面影响父母生活质量的关键因素包括照顾者的压力增加,社会隔离,财务负担和支持服务的分散.
- 综合干预措施 (心理教育,行为指导,适应环境) 显示了父母心理健康和QOL中适度的改善.
结论:
- 多学科,以家庭为中心的计划对于提高家长的QOL至关重要.
- 解决金融和可访问性障碍的政策对于支持患有自闭症儿童的家庭至关重要.
- 需要进一步的纵向和文化多样化的研究来确定最佳的干预组件,以获得持续的好处.
相关概念视频
Autism Spectrum Disorder
973
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
973
Modeling in Therapy
380
Modeling, a key technique in therapy, uses observational learning to help clients acquire and practice new skills by watching therapists demonstrate desired behaviors. This approach, rooted in Albert Bandura's concept of vicarious learning, plays a significant role in therapeutic interventions for various psychological conditions, including social anxiety, ADHD, and depression.
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
Participant Modeling
Participant modeling involves therapists demonstrating calm and effective behaviors in...
380
Self-Evaluation: Self-Enhancement and Self-Verification
5.7K
Social psychologists have documented that feeling good about ourselves and maintaining positive self-esteem is a powerful motivator of human behavior (Tavris & Aronson, 2008). In the United States, members of the predominant culture typically think very highly of themselves and view themselves as good people who are above average on many desirable traits (Ehrlinger, Gilovich, & Ross, 2005). Often, our behavior, attitudes, and beliefs are affected when we experience a threat to our...
5.7K
Parenting Styles
585
Diana Baumrind's four parenting styles — authoritarian, authoritative, neglectful, and permissive — each influence children's socio-emotional development differently.
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
585
Relationship with Parents: Attachment
220
Parent-child interactions lay the foundation for how we understand relationships throughout life. These interactions are not uniform across families; instead, they are shaped by a range of environmental, emotional, and behavioral factors unique to each caregiver-child dynamic. Social psychologists study these early relationships to understand how patterns formed in infancy influence social functioning and interpersonal behavior in adulthood.Attachment Theory and Early Relational ModelsJohn...
220
Socioemotional Development during Infancy
430
Socio-emotional development in infancy is primarily shaped by early emotional responses and social connections, with temperament playing a central role. Temperament refers to the consistent patterns in an individual's emotional and behavioral responses, observable even in infancy. By examining temperament, researchers can better understand an infant's unique ways of interacting with the world, influencing subsequent personality and socio-emotional growth.
Primary Temperament Types
Primary Temperament Types
430


