母亲们对自闭症成年人的挑战,社区支持差距和通往独立的途径的实践经验 - 一项现象学研究
Hend Abdu Alnajjar1, Amal Ibrahim Khalil2, Neama Yousef Hantira3
1KING SAUD BIN ABDULAZIZ UNIVERSITY FOR HEALTH SCIENCES, COLLEGE OF NURSING, JEDDAH, SAUDI ARABIA; KING ABDULLAH INTERNATIONAL MEDICAL RESEARCH CENTER (KAIMRC), JEDDAH, SAUDI ARABIA.
概括
自闭症成年人的沙特母亲在促进独立和人际关系方面面临挑战. 为了获得更好的结果,他们需要加强社区支持,早期干预和家庭资源.
科学领域:
- 神经发育障碍 神经发育障碍
- 自闭症谱系障碍研究研究
- 孕产妇健康与支持
背景情况:
- 自闭症谱系障碍 (ASD) 显著影响家庭,特别是母亲.
- 促进自主和有意义的关系的成年人与ASD提出了独特的挑战.
- 了解沙特母亲与成年自闭症儿童的经历对于有针对性的支持至关重要.
研究的目的:
- 确定沙特母亲在培养自主性和关系方面面临的障碍,以帮助他们的成年自闭症儿童.
- 评估现有的社区资源和这些母亲可用的支持系统.
- 收集建议,以改善自闭症成年人母亲的支持结构.
主要方法:
- 采用了定性现象学研究设计.
- 方便采样包括17名自闭症成年人的母亲.
- 焦点小组讨论使用开放式问题来探索挑战和应对策略.
主要成果:
- 主题分析揭示了六个核心主题和子主题.
- 母亲的经历从最初的自闭症检测到适应和应对策略.
- 主要主题集中在实现自闭症成年人独立生活的挑战和机制上.
结论:
- 综合性支持系统至关重要,包括早期干预和专业资源.
- 训练有素的护理人员和社区参与对于成功的整合和接受至关重要.
- 综合家庭支持对于自闭症患者和母亲的福祉至关重要.
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