知识 + 创新 = 权力:在原住民医疗服务中实施原住民数据主权的协议,以进行服务提供改革
Emma Haynes1,2, Lesley Nelson3, Heather D'Antoine4,5
1School of Population and Global Health, Cardiovascular Epidemiology Research Centre, University of Western Australia, Perth, Western Australia, Australia.
PloS one
|October 13, 2025
概括
原住民社区控制的卫生组织 (ACCHO) 需要文化知情的数据工具来改善综合性初级卫生保健 (CPHC). 这个项目使用参与式研究来建立数据主权并增强自决,以获得更好的健康结果.
科学领域:
- 土著健康研究土著健康研究
- 公共卫生政策 公共卫生政策
- 数据治理数据治理
背景情况:
- 澳大利亚的土著社区控制的卫生组织 (ACCHO) 对综合性初级卫生保健 (CPHC) 至关重要.
- 由于行政负担,政策和资金挑战阻碍了ACCHOs提供CPHC的能力.
- 文化为基础的数据措施被边缘化,影响了CPHC服务的开发和评估.
研究的目的:
- 授权ACCHO领导数据收集和使用,以提高自决能力.
- 开发和实施符合社区需求的文化信息数据措施和工具.
- 增强ACCHO内部利用有意义数据的能力,技能和基础设施.
主要方法:
- 原住民参与行动研究 (APAR) 混合方法发展评估方法.
- 与西南原住民医疗服务 (SWAMS) 在西澳大利亚地区的合作.
- 发展一个社区研究小组,为数据素养提供区域性研讨会,并纳入原住民研究方法.
主要成果:
- 第一阶段的重点是制定制定文化信息化数据措施和工具的协议.
- 建立数据素养,并为选择的健康优先事项确定创新的数据解决方案.
- 确保在整个研究过程中纳入原住民的认识,存在和行动方式.
结论:
- 该项目将为ACCHO建立基于证据的决策和地方评估的能力.
- 支持通过实时评估综合护理模型来支持自决.
- 通过社区主导的数据倡议加强原住民数据主权 (ADS) 原则.
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