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Updated: Jan 15, 2026

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis ALS

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Published on: February 21, 2011

国际语音语言病理学家与肌缩侧面硬化症患者工作的实践模式调查

Lauren Tabor Gray^1,2, Stacey Sullivan³, Meghan O'Brien⁴

¹College of Allopathic Medicine, Nova Southeastern University, Davie, FL.

American journal of speech-language pathology

|October 13, 2025

概括

语音语言病理学家 (SLP) 展示了评估和治疗肌缩侧面硬化症 (ALS) 肌功能障碍的各种实践. 迫切需要标准化指南,以改善对患有吞和沟通障碍的ALS患者的护理.

科学领域:

神经学神经学
语音和听力科学语言和听力科学

背景情况:

肌缩侧面硬化症 (ALS) 显著影响吞和沟通.
目前尚缺少针对ALS的腹筋功能障碍的标准化临床实践指南.

研究的目的:

描述语音语言病理学家 (SLP) 在评估和治疗ALS中的腹筋功能障碍方面的国际实践模式.
确定当前临床管理中的变异性和潜在缺口.

主要方法:

一项26项Qualtrics调查通过电子方式分发给全球的SLP.
从20个国家和32个美国州的214名受访者收集了数据.

主要成果:

评估经常包括脑神经检查,吞试验和语音可理解性任务.
在使用仪器吞评估和沟通干预方法方面存在显著的变化.
获得最佳护理的障碍包括时间限制,培训,治疗时间,心理社会因素,资源获取和跨学科沟通.

结论:

目前在ALS中管理腹筋功能障碍的做法缺乏共识,特别是在干预时间方面.
迫切需要一个标准化的最小数据集,以指导ALS中的囊筋功能障碍的评估和管理.

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Autism Spectrum Disorder

Autism Spectrum Disorder

Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
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