患有Charcot-Marie-Tooth疾病的个体对脚脚的感知
Kirsten M Anderson1, Riccardo Zuccarino2, Sara M Magdziarz1
1Department of Physical Therapy and Rehabilitation Science, The University of Iowa, Carver College of Medicine, Iowa City, IA, USA.
Prosthetics and orthotics international
|October 14, 2025
概括
患有Charcot-Marie-Tooth病 (CMT) 的人发现脚脚 (AFOs) 改善了步行和平衡,但对鞋子的兼容性和外观存在担忧. 进一步的研究可以提高AFO的功能和患者的坚持.
科学领域:
- 整形术和生物力学
- 神经肌肉疾病 神经肌肉疾病
- 患者报告的结果
背景情况:
- 查尔科-玛丽-牙病 (CMT) 经常需要使用脚足骨架 (AFOs) 来管理功能缺陷.
- 了解患者对AFO的看法对于优化治疗疗效至关重要.
研究的目的:
- 调查CMT患者如何感知AFO使用对其日常功能的影响.
- 根据用户反,确定在AFO设计和应用中需要改进的具体领域.
主要方法:
- 对310名CMT患者进行了一项横截面在线调查.
- 参与者对所需的AFO修改,改善活动和限制活动提供了定性反.
- 用一种诱导方法分析了回复,以确定关键主题,并评估了评审者之间的可靠性.
主要成果:
- 想要改变的关键主题包括易用性,鞋子兼容性,耐用性,外观和舒适性.
- 据报道,AFO可以改善步行,站立,平衡,身体健康和日常活动.
- 限制包括鞋子/服装问题,斜坡平衡,移动性和长期使用.
结论:
- 这项研究中患者报告的主题与现有数据保持一致,但也揭示了通常不会在标准问卷中捕捉到的新问题.
- 这些发现突出了改善CMT患者整形干预的关键领域.
- 解决这些用户识别的问题可能会改善功能结果和遵守AFO治疗.
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