数据字典:为道德和透明地使用集成数据而必不可少的工具
1University of Pennsylvania, School of Social Policy & Practice, Philadelphia, 19104.
International journal of population data science
|October 15, 2025
概括
数据字典对于在综合数据系统 (IDS) 中以道德和透明的方式使用链接的行政数据至关重要. 他们确保数据是可查找,可访问,可互操作和可重复使用的 (FAIR),支持研究完整性.
科学领域:
- 数据科学数据科学数据科学
- 信息科学 信息科学 信息科学
- 公共管理 公共管理
背景情况:
- 对行政数据的道德使用至关重要,特别是在综合数据系统 (IDS) 中.
- 链接的行政数据为研究提供了有价值的见解,但需要谨慎管理.
- 数据字典是数据系统中元数据管理的关键资源.
研究的目的:
- 评估数据字典在促进IDS内部透明度和道德数据使用方面的作用.
- 使用FAIR原则框架评估数据词典的有效性.
- 确定在IDS中增强数据字典实用性的挑战和机会.
主要方法:
- 使用FAIR原则 (可找到,可访问,可互操作,可重复使用) 作为框架.
- 在集成数据系统的背景下分析数据字典的功能.
- 讨论了数据字典对链接行政数据的伦理生命周期的贡献.
主要成果:
- 数据字典是确保数据生命周期透明度的重要工具.
- 公平原则为衡量数据字典效率提供了一个强大的框架.
- 数据字典对敏感的相关行政数据的伦理处理做出了重大贡献.
结论:
- 数据字典对于道德和透明地使用集成数据至关重要.
- 遵守公平原则提高了数据词典的价值和可信度.
- 需要持续开发,以应对IDS数据字典实施的剩余挑战.
更多相关视频
07:50A Metadata Extraction Approach for Clinical Case Reports to Enable Advanced Understanding of Biomedical Concepts
Published on: September 20, 2018
16.4K
07:26Executing Complexity-Increasing Queries in Relational MySQL and NoSQL MongoDB and EXist Size-Growing ISO/EN 13606 Standardized EHR Databases
Published on: March 19, 2018
9.7K
相关概念视频
Ethical Standards I
1.5K
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
1.5K
Statistical Software for Data Analysis and Clinical Trials
1.4K
Statistical software is pivotal in data analysis and clinical trials by providing tools to analyze data, draw conclusions, and make predictions. These software packages range from simple data management applications to complex analytical platforms, supporting various statistical tests, models, and simulation techniques. Their significance lies in their ability to handle vast amounts of data with precision and efficiency, enabling researchers to validate hypotheses, identify trends, and make...
1.4K
Data Reporting and Recording
5.3K
Reporting and recording are crucial in data documentation. The timely, thorough, and accurate documentation of facts is essential when recording patient data. Failure to record findings during an assessment or interpretation of a problem will result in loss of information and make the patient document unreliable. The reader is left with general impressions if the information is not specific. A recording is documenting data of the individual's health information in a traceable, secure, and...
5.3K
Principles of Disease Surveillance
466
Disease surveillance is the systematic collection, analysis, and interpretation of health data essential to the planning, implementation, and evaluation of public health practice. This process integrates data dissemination to entities responsible for preventing and controlling disease, injury, and disability. Surveillance systems provide crucial information for action, helping public health authorities make informed decisions to manage and prevent outbreaks, ensure public safety, optimize...
466
Introduction to Documentation and Reporting
2.8K
Documentation is the systematic process of formally recording, maintaining, and communicating information.
Nursing documentation records essential information and details regarding a patient's care and treatment in written or electronic form. It is a critical aspect of nursing practice that involves documenting assessments, interventions, outcomes, and other relevant details about a patient's health status.
Documentation maps the patient's health journey by creating a comprehensive...
Nursing documentation records essential information and details regarding a patient's care and treatment in written or electronic form. It is a critical aspect of nursing practice that involves documenting assessments, interventions, outcomes, and other relevant details about a patient's health status.
Documentation maps the patient's health journey by creating a comprehensive...
2.8K
Ethical Standards II
1.2K
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
1.2K
