在口头自闭症成年人中开发孤独的概念模型,使用定性内容分析
Hillary Schiltz1, Derica Su2,3, Juliette Lerner2
1Semel Institute for Neuroscience and Human Behavior, University of California, Los Angeles, 760 Westwood Plaza, Los Angeles, CA, 90024, USA. hschiltz@mednet.ucla.edu.
Journal of autism and developmental disorders
|October 15, 2025
概括
自闭症成年人以不同的方式体验孤独,需要新的概念模型. 这项研究改进了对自闭症孤独的理解,以改善对这一弱势群体的评估和支持.
科学领域:
- 自闭症谱系障碍 自闭症谱系障碍
- 心理健康研究 心理健康研究
- 心理测量 心理测量
背景情况:
- 自闭症成年人面临孤独的高风险,这对健康有严重的影响.
- 现有的孤独模型可能无法准确地捕捉自闭症体验.
- 了解自闭症孤独对于开发有效的干预措施至关重要.
研究的目的:
- 探索孤独在自闭症社区中的运作和意义.
- 为自闭症成年人开发一个细微的孤独概念模型.
- 为未来关于自闭症孤独的研究和临床实践提供信息.
主要方法:
- 遵循患者报告结果测量信息系统 (PROMIS) 的初步指南.
- 从一般人口文献中开发了一个最初的孤独概念模型.
- 对焦点小组进行了定性内容分析,并采访了13名自闭症成年人和5名自闭症专业人士.
主要成果:
- 参与者证实了研究自闭症孤独的重要性,因为它的流行程度和影响.
- 概念模型被修订,包括诸如社会疲劳和差异感等因素.
- 进行了关键的区分,例如对关系的满意度与仅仅存在的关系.
结论:
- 一个关于自闭症孤独的新概念模型被提出.
- 这个模型突出了自闭症孤独的独特方面,这些方面被一般人群的测量所遗漏.
- 迫切需要改进评估自闭症成年人孤独感的方法.
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