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眼科护理中的自闭症:专业知识,信心和临床经验的混合方法研究
Chris Edwards1,2, Abigail M A Love1,3, Ru Ying Cai1,4,5
1Aspect Research Centre for Autism Practice (ARCAP), Aspect (Autism Spectrum Australia), Sydney, New South Wales, Australia.
概括
眼科专业人员表现出帮助自闭症患者的动机,但缺乏正式培训,并面临系统性障碍. 提供无障碍,以人为中心的眼科护理需要实际资源和政策变化.
科学领域:
- 眼科和眼镜检查的眼科和眼镜检查
- 神经发育障碍 神经发育障碍
- 医疗保健的可访问性 医疗保健的可访问性
背景情况:
- 自闭症患者经历了严重的医疗保健接入障碍,导致差距.
- 对自闭症患者眼睛护理经验的研究越来越多,但眼睛护理专业人员的观点未得到充分研究.
研究的目的:
- 评估眼科专业人员的自闭症知识,自我效能和态度.
- 探索他们在照顾自闭症患者时的临床经验,挑战和支持需求.
主要方法:
- 一项混合方法研究,结合了在线调查 (n=198) 和定性内容分析.
- 参与者包括眼科医生和眼科医生,主要来自澳大利亚,美国和英国.
- 回归和相关性分析检查了知识,自我效能和态度的预测因素;对主题进行了开放式响应分析.
主要成果:
- 专业人士报告中度自我效能,知识和积极态度,但只有14%接受过正式的自闭症培训.
- 与自闭症患者的频繁临床接触强烈预测了更高的自我效能.
- 确定的挑战包括感官敏感性,时间限制和沟通障碍;注意到了灵活测试和适应等策略.
结论:
- 眼科专业人员有动力,但缺乏结构化的培训,在为自闭症患者提供可访问的护理方面面临系统性限制.
- 与自闭症患者合作开发实用,自闭症相关的资源至关重要.
- 需要改变临床政策和工作流程,以提高服务的可访问性和以人为中心的护理.
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