开发和测试亚裔美国癌症患者虚拟导航在线门户:试点可行性研究
Janet N Chu1,2, Debora Oh3, Laura Allen3
1Department of Medicine, University of California, 490 Illinois Street, San Francisco, CA, 94158, United States, 1 415-514-8686.
JMIR cancer
|October 17, 2025
概括
虚拟患者导航改善了亚裔美国癌症患者的情感福祉. 这个多语言在线门户网站提供了文化适当的支持,尽管存在一些技术问题,但扩展了导航优势.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者支持服务服务.
背景情况:
- 亚裔美国患者面临着独特的癌症护理挑战和障碍.
- 面对面的病人导航是资源密集型的;虚拟导航可以扩大访问.
- 虚拟导航对于非英语语言使用者来说尤其有益.
研究的目的:
- 开发,实施和评估一个虚拟的病人导航在线门户.
- 为亚裔美国患者提供多语言资源 (英语,中文,越南语).
- 支持新诊断出结直肠,肺或肝癌的患者.
主要方法:
- 开发了一个安全的,基于云的在线门户,为公众,导航员和参与者使用提供了不同的界面.
- 招募的亚裔美国成年人患有I-IV期结肠直肠,肺癌或肝癌,会说英语,广东语,普通话或越南语.
- 语言一致的导航者通过门户提供了六个月的定制支持;生活质量 (FACT-G) 和用户体验被评估.
主要成果:
- 51名参与者完成了研究;92-96%完成了3个月和6个月的调查.
- 癌症治疗一般 (FACT-G) 的平均功能评估得分保持稳定,在6个月后情绪健康显著增加.
- 94%的人认为该程序在文化上是适当的,74%的人认为导航员的呼叫是有帮助的,74%的人会推该程序,尽管存在一些技术登录问题.
结论:
- 多语言的虚拟患者导航程序在文化上是适当的,并被认为是有帮助的.
- 该在线门户网站展示了改善亚裔美国癌症患者情绪健康的潜力.
- 语言一致的虚拟导航和在线工具可以有效地扩展患者导航服务.
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