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Updated: Jul 25, 2026

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
09:18

Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy

Published on: January 12, 2019

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一种定性,混合方法的方法,以达成共识,功能,疲劳和疲劳的结果在青少年和成年人生活与脊柱肌肉缩

Jacqueline Glascock1, Lisa T Belter1, Meghan Moore Burk2

  • 1Cure SMA, 925 Busse Road, Elk Grove Village, IL, 60007, USA.

Orphanet journal of rare diseases
|October 17, 2025
PubMed
概括

脊柱肌缩 (SMA) 患者和专家一致认为,日常生活活动 (ADL) 最好衡量功能变化. 这一发现支持制定SMA评估的核心结果措施.

关键词:
这些ADLs是ADLs.日常生活中的活动.克罗姆 (Chrome) 是一种.临床医生报告的结果衡量措施.在这种情况下,Prom是Prom.患者报告的结果衡量措施.感知到的疲劳性.感知到的疲劳感觉到的疲劳.在此期间,SMA SMA SMA脊柱肌肉缩 脊柱肌肉缩 脊柱肌肉缩

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