在儿科ECMO后,家长对以家庭为中心的后续监测的观点
Elizabeth A Herrup1,2, Taylor Huntington1,2, Tracy Baust1,2
1Department of Critical Care Medicine, University of Pittsburgh, Pittsburgh, PA, USA.
概括
护理人员希望在儿科外膜氧化后 (ECMO) 护理方面得到更多支持,包括教育,心理社会援助和更好的医疗保健协调. 需要一个结构化,多学科的ECMO后续计划.
科学领域:
- 儿科重症监护医药 儿科重症监护医药
- 心肺支技术的使用.
背景情况:
- 身体外膜氧化 (ECMO) 为重症新生儿和儿童提供生命支持.
- 儿科ECMO幸存者的长期结果和后续护理需求尚未完全理解.
- 护理人员的观点对于制定有效的ECMO后护理策略至关重要.
研究的目的:
- 探索护理人员的经验,并确定后ECMO后续护理的关键组成部分和挑战.
- 了解护理人员对信息,心理社会支持和医疗保健协调的需求.
- 为制定结构化,多学科的ECMO后续计划提供信息.
主要方法:
- 在2015年至2020年期间对儿科ECMO幸存者的护理人员 (年龄<18岁) 进行了单中心电子调查.
- 联系了143个符合条件的家庭;50个家庭 (54%的响应率) 完成了调查.
- 数据分析包括人口统计信息,健康状况,参与随访的可能性和开放式响应.
主要成果:
- 这项研究包括50名儿科ECMO幸存者的护理人员 (60%是男性,管时中位数年龄为3个月).
- 37%的幸存者在ECMO后的整体健康状况相当或很差.
- 大多数护理人员很可能会参加多学科的面对面 (66%) 或虚拟 (77%) 后续检查.
- 护理人员发现需要加强信息/教育,心理社会支持和医疗保健协调.
结论:
- 护理人员表达出强烈的意愿参与结构化的ECMO后续护理.
- 对于儿童ECMO幸存者及其家属,有很大需要改善信息,心理社会支持和医疗保健协调.
- 开发和实施一个多学科的ECMO后续计划,与患者和家人的参与是必不可少的.
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