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"仍处于生存模式":创伤映射儿童脑瘤的家长经历

Melanie L Rolfe¹, Evonne Miller², Liesje Donkin³

¹Cancer and Palliative Care Outcomes Centre at Centre for Children's Health Research, School of Nursing, Queensland University of Technology, Brisbane, QLD, Australia.

Qualitative health research

|October 18, 2025

概括

患有脑瘤的孩子的父母由于医疗保健经历而经历了严重的痛苦和创伤. 改善沟通和创伤信息的护理对于提高父母的心理福祉至关重要.

科学领域:

儿科瘤学儿科瘤学
心理创伤心理创伤
医疗保健经验研究研究研究

背景情况:

儿童时代的大脑瘤严重影响父母的心理健康,往往导致创伤后压力.
了解医疗保健旅程中的创伤来源对于支持受影响家庭至关重要.

研究的目的:

为了探索创伤的经历和父母导航儿童大脑瘤护理的需求.
识别医疗保健互动中的因素,这些因素有助于家长的痛苦,并为创伤知情的护理策略提供信息.

主要方法:

进行了一项旅程绘图练习,与9名患有脑瘤的孩子的母亲一起进行.
数据收集涉及在线焦点小组和书面响应,使用框架分析和研究诗歌进行分析.

主要成果:

父母报告了与医疗保健相关的创伤事件和无助感,导致持续的痛苦.
临床医生和家长之间的沟通透明度增加,促进了信任和心理安全.
研究诗歌,使用参与者引用,说明关键里程碑和情感经历.

结论:

对于患有脑瘤的孩子的父母来说,医疗保健经历可能是创伤性的,这凸显了需要改善支持的需要.
以创伤为基础的护理和增强的沟通对于改善父母的心理健康至关重要.
这项研究为儿童脑瘤治疗期间的父母创伤和情感经历提供了新的见解.

关键词:

访问和评估和评估.孩子孩子孩子孩子孩子孩子医疗保健的质量医疗保健的质量这些都是新生儿瘤.父母父母的父母是什么意思心理安全心理安全与创伤和压力因素相关的疾病.

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