标准化跨疾病的患者报告结果:开发一套新的全方位患者报告结果
Preston Long1, Alize Rogge2, Ann-Kristin Porth3
1Institute for Outcomes Research, Medical University of Vienna, Vienna, Austria.
Frontiers in health services
|October 20, 2025
概括
这项研究开发了一个基于价值的医疗保健的10核心领域通用患者报告结果 (PRO) 集. 该框架促进在不同患者群体和环境中一致测量健康结果.
科学领域:
- 健康 结果 研究 研究 结果
- 基于价值的医疗保健
- 患者报告的结果
背景情况:
- 患者报告的结果 (PRO) 对基于价值的医疗保健至关重要,但缺乏共识阻碍了跨疾病的可比性和影响评估.
- 卫生结果观测站 (H2O) 项目旨在通过开发一种普遍适用的通用PRO集来弥补这一差距.
研究的目的:
- 建立一个国际的,多利益相关者在一个通用的PRO集的共识.
- 确保适用于各种疾病和利益相关者.
- 为健康数据空间和一致的结果测量奠定基础.
主要方法:
- 一项全面的文献审查确定了经常使用的通用PROs.
- 一个三轮的德尔菲共识程序完善了结果.
- 与疾病特异性结果进行交叉引用,并将其映射到Max Neef的人类需求模型中,确定了重叠和差距.
主要成果:
- 在文献搜索中,得出了190个PROM及其测量域.
- 德尔菲程序的结果是10个核心领域:精神,身体和社会福祉,整体健康状况,疲劳,疼痛,睡眠质量,性,自我效能和治疗满意度.
- 对人类需求模型的映射显示,一些需求,如身份和休,没有得到充分解决.
结论:
- H2O通用结果集提供了一个疾病通用,以域为中心的PRO框架.
- 这一框架支持不同环境和不同人群的治疗结果的一致性.
- 它作为开发强大的健康数据空间的基础.
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