功能性移动性结果测量的心理测量属性在患有关节形多重性先天性儿童中
Ahlam Zidan1,2, Laurie Snider1, Emmanouil Rampakakis1,3
1Faculty of Medicine and Health Sciences, McGill University, Montreal, Quebec, Canada.
Developmental medicine and child neurology
|October 22, 2025
概括
这项研究验证了患有先天性多发性关节炎 (AMC) 的儿童的移动性措施. 这些发现建立了可靠的基准来评估这一群体的功能性移动性.
科学领域:
- 儿科康复儿童康复中心
- 整形外科 整形外科 整形外科
- 运动科学 运动科学
背景情况:
- 综合性先天性关节 (AMC) 是一种罕见的神经肌肉疾病,影响关节的移动性.
- 准确评估功能性移动性对于指导AMC儿童的干预至关重要.
- 现有的流动性措施需要对AMC群体的构造有效性,协议和最小重要差异 (MID) 进行验证.
研究的目的:
- 确定AMC儿童常用的流动性措施的构造有效性,一致性和MID.
- 为临床医生和研究人员提供基于证据的基准,以评估AMC中的流动性.
- 为了比较功能移动度量 (FMS),吉莱特功能评估问卷 (FAQ),儿童功能独立度量 (WeeFIM) 和患者报告结果测量信息系统 (PROMIS) 的性能.
主要方法:
- 评估了248名患有AMC的儿童队列 (平均年龄为10岁10个月).
- 使用相关性和ANOVA评估了合性,区分性和已知组的有效性.
- 使用Cohen的kappa评估了协议,使用基于分布的方法估计了MID.
主要成果:
- 所有四个流动性措施都表现出强大的收性和差异性有效性.
- 在AMC亚型中观察到移动性的显著差异,支持已知组的有效性.
- 发现了较弱至良好的协议,FMS (1级),FAQ (2级),PROMIS (3.19-4.34) 和WeeFIM (14.24) 已建立的MID.
结论:
- 经过验证的移动性措施为评估AMC儿童的功能移动性提供了可靠的工具.
- 建立的构造有效性,协议和MID为临床实践和研究提供了必要的基准.
- 这些发现支持使用FMS,FAQ,WeeFIM和PROMIS进行基于证据的儿童AMC移动性评估.
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