探索父母/护理人员参与WeCare计划后的父母/护理人员对神经发育障碍诊断后的父母/护理人员的观点
Elena Hatzis1, Anoo Bhopti2, Helen Bourke-Taylor3
1Department of Occupational Therapy, Monash University, Melbourne, Victoria, Australia.
BMJ paediatrics open
|October 22, 2025
概括
我们的WeCare计划通过减少孤立和提高对导航服务的信心来支持神经发育障碍儿童的父母. 这种在线,同行支持的干预措施增强了家庭福祉和家长能力.
科学领域:
- 职业治疗是一种职业疗法.
- 家庭支持计划 家庭支持计划
- 神经发育障碍是指神经发育障碍.
背景情况:
- 患有神经发育障碍儿童的父母在诊断过程中遇到重大挑战.
- 这些挑战可能会对父母的健康,福祉和职业参与产生负面影响.
- 我们的WeCare计划是一个在线的,以小组为基础的,同行支持的干预,旨在帮助父母在诊断期间.
研究的目的:
- 调查参与WeCare计划的家长的生活经历.
- 了解WeCare计划如何影响家庭福利,生活质量和从事有意义的职业.
主要方法:
- 一个使用半结构面试的定性研究设计.
- 通过Zoom在线采访完成了WeCare计划的家长.
- 数据分析采用了布劳恩和克拉克的反射主题分析.
主要成果:
- 七名家长参与了调查,报告说,他们减少了孤立感,并增加了对了解孩子的诊断和服务的信心.
- 参与者重视同行支持和专业便利,并被促使考虑自我照顾.
- 福利战略的实施受到结构性和个人因素的影响,这表明存在系统性障碍.
结论:
- 维凯尔计划提供及时有效的支持,补充了残疾儿童父母现有的服务.
- 它增强了以家庭为中心的实践和家长能力,但需要更广泛的系统性改革来解决服务差距.
- 职业治疗师可以利用像WeCare这样的专业计划来改善父母的支持和家庭的结果.
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