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Updated: Jan 13, 2026

Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack
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解决罕见疾病中的心理社会脆弱性:来自欧洲专家共识研究的行动呼吁

Rosanne M Smits1,2, Aukje Aerts1, Teodor Angelov3

  • 1Department of Medical Psychology, Amalia Children's Hospital, Radboud University Medical Centre, 9101, 6500 HB, Nijmegen, The Netherlands.

Orphanet journal of rare diseases
|October 28, 2025
PubMed
概括

患有罕见病的人面临着重大的心理社会挑战. 这项研究确定了关键的需求和研究方向,以改善对罕见病患者的心理社会支持,增强他们的福祉和医疗保健整合.

关键词:
达成共识研讨会共识研讨会心理社会因素 心理社会因素生活质量生活的质量.罕见疾病是一种罕见的疾病.

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