谁的自主权是重要的? 使用关系自主性来分析癌症临床试验决策中的护理人员角色
Eric C Blackstone1,2,3, Susan R Mazanec2,3,4, Barbara J Daly2
1School of Medicine, Case Western Reserve University, Cleveland, Ohio, USA.
AJOB empirical bioethics
|October 28, 2025
概括
家庭护理人员在癌症临床试验决策中发挥着至关重要的作用,帮助患者的自主性和坚持. 他们的参与和决策影响需要进一步的研究和定制的共享决策工具.
科学领域:
- 在瘤学瘤学.
- 生物伦理学生物伦理学
- 定性研究是指质量研究.
背景情况:
- 参与临床试验对癌症患者和家庭护理人员来说是个挑战.
- 关于护理人员在临床试验决策中的作用的研究有限.
- 本研究探讨了护理人员的观点和临床试验工作人员对护理人员参与知情同意的看法.
研究的目的:
- 了解护理人员如何看待他们在癌症临床试验决策中的角色.
- 探索临床试验工作人员对包括护理人员在知情同意过程中的态度.
主要方法:
- 进行了四个焦点小组 (护理人员和临床试验人员) 和15个半结构化的护理人员访谈.
- 使用了依据关系自主理论的吸收性内容分析.
- 焦点小组的发现指导了面试指南的开发.
主要成果:
- 护理人员认为他们的角色是支持患者的自主权,并充当一个响应板.
- 护理人员表示,他们对自己在决策中的影响程度持矛盾态度.
- 临床试验工作人员认识到护理人员对患者遵守的重大影响和重要性.
结论:
- 护理人员在临床试验决策和遵守中的作用需要进一步的生物伦理和研究关注.
- 需要包括护理人员在内的共享决策 (SDM) 模型.
- 未来的研究应该开发包含关系自主性的SDM工具,以定义适当的护理人员角色.
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