欧洲青光眼的现实数据景观:基于问卷的分析,对欧洲青光眼协会成员的资源进行了分析
Marta Pazos1,2,3, Andrew Tatham4, Danilo Andrade De Jesus5
1Insitut Clínic d'Oftalmologia, Hospital Clínic Barcelona, Barcelona, Spain martapazoslopez@gmail.com.
BMJ open ophthalmology
|October 28, 2025
概括
欧洲青光眼专家广泛使用电子医疗记录 (EMR) 来收集真实世界的数据 (RWD). 然而,数据提取能力的重大缺口阻碍了欧洲各地的RWD协作努力.
科学领域:
- 眼科医生 眼科 眼科
- 医疗信息学 医疗信息学
- 现实世界的数据
背景情况:
- 电子病历 (EMR) 的采用在欧洲眼专家中越来越多.
- 在眼研究中,协作收集真实世界数据 (RWD) 的潜力很大.
研究的目的:
- 评估支持全欧洲协作RWD收集青光眼的资源景观.
- 确定欧洲青光眼临床医生的必要资源的可用性.
主要方法:
- 一项使用电子问卷的两阶段横截面研究.
- 第一阶段调查了欧洲青光眼协会成员对EMR使用情况.
- 第二阶段调查了EMR用户关于RWD贡献的数据特征和技术资源.
主要成果:
- 在201名格劳科马专家中,68%使用EMR,诊断 (47%) 和药物 (65%) 的编码率很高.
- 从EMR中进行有限的自动数据提取,用于周边 (10%) 和OCT (8%).
- 对于眼内压力 (IOP) (67%),视力敏度 (59%) 和IOP (56%) 的结构化数据是最可用的; 41%的人有联合的学习经验, 73%的人愿意贡献.
结论:
- 使用EMR很普遍,提供了一些结构化的玻璃眼数据,但数据提取仍然是一个挑战.
- 电子电路的异质性,缺乏标准化结果和系统差异构成了主要障碍.
- 建议采用综合方法,利用结构化编码,数字化EMR数据和半结构化OCT/周边数据.
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