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为患有下尿路功能障碍的儿童开发和验证莱利膀生活质量调查问卷 (RIBQQ)
Konrad M Szymanski1, Benjamin Whittam1, Hannah Dillon1
1Division of Pediatric Urology, Riley Children's Health at IU Health, Indianapolis, IN, USA.
Journal of pediatric urology
|October 28, 2025
概括
一个新的莱利膀生活质量调查问卷 (RIBQQ) 有效地测量了患有下尿路功能障碍 (LUTD) 的儿童的与健康有关的生活质量. 这种经过验证的工具显示出高可靠性,并检测出与症状改善相关的变化.
科学领域:
- 儿科泌尿外科 儿科泌尿外科
- 与健康相关的生活质量研究研究
- 调查问卷的开发和验证
背景情况:
- 对于患有下尿路功能障碍 (LUTD) 的儿童,现有的与健康相关的生活质量 (HRQOL) 工具缺乏以儿童为中心的关注和对症状的敏感性.
- 需要一个经过验证的,儿童报告的调查问卷,专门为儿科LUTD设计.
研究的目的:
- 为儿科患者开发和验证一个以儿童为中心,针对LUTD的HRQOL问卷.
- 评估新问卷的心理测量特性和临床相关性.
主要方法:
- 通过涉及儿童,家长和提供者的综合过程,制定了10个问题的莱利膀生活质量问卷 (RIBQQ).
- RIBQQ对172名LUTD儿童 (8-17岁) 和32名对照进行了RIBQQ,随后进行了包括可靠性和有效性测试在内的心理测试.
- 与现有症状和HRQOL问卷 (VQ,PinQ,Kidscreen-10) 的相关性以及对3个月的变化进行了分析.
主要成果:
- 十个问题的RIBQQ显示出高的内部一致性 (克朗巴赫的α=0.85) 和测试复试可靠性 (ICC=0.80).
- 与对照组相比,患有LUTD的儿童的RIBQQ得分明显较低,与LUTD严重程度相关.
- 在RIBQQ检测到3个月的HRQOL有意义的变化,与症状改善相关.
结论:
- RIBQQ是一个简短,有效和可靠的HRQOL问卷,用于患有LUTD的儿童.
- 它在对LUTD症状和临床变化的敏感性方面表现优于现有的一般HRQOL措施.
- RIBQQ可能成为评估儿科LUTD临床变化的首选方法.
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