荷兰人口中关于电子健康的信息缺陷,信息需求和偏好与代谢功能障碍相关的性肝病:横截面调查研究
Sharon Oude Veldhuis1,2, Maureen M J Guichelaar3, Marjolein E M den Ouden1,4
1Research Group Technology, Health & Care, Saxion University of Applied Sciences, M.H. Tromplaan 28, Enschede, 7513 AB, The Netherlands, 088-0198888.
JMIR formative research
|October 29, 2025
概括
与代谢功能障碍相关的脂肪性肝病 (MASLD) 患者有显著的信息差距,并希望获得更多的资源. 电子健康干预可以有效地解决这些需要,以更好地管理MASLD.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 代谢功能障碍相关的脂肪性肝病 (MASLD) 是一种普遍的与生活方式相关的疾病,需要进行生活方式干预.
- 由于知识缺陷和医疗保健专业人员的时间限制,患者面临着坚持生活方式变化的挑战.
- 电子卫生干预提供了一个潜在的解决方案,以改善信息传递和支持MASLD患者.
研究的目的:
- 调查MASLD患者的信息需求和缺陷.
- 探索患者对未来电子卫生干预措施的偏好,以支持MASLD管理.
主要方法:
- 通过荷兰患者组织招募的449名MASLD患者进行了横截面调查.
- 调查问卷评估了社会人口结构,信息提供,需求和电子卫生干预偏好.
- 统计分析,包括皮尔森千平方测试和后勤回归,确定了子组差异.
主要成果:
- 超过80%的受访者报告说,他们对MASLD主题的信息不足,并希望获得更多信息.
- 没有意识到疾病阶段的患者对一般信息的需求更高.
- 对电子健康的兴趣主要集中在信息传递和实践示例上,而不是社交互动.
结论:
- 大多数MASLD患者经历了大量的信息缺陷和强烈需要额外的资源.
- 了解患者信息需求和电子健康偏好对于开发有效的数字健康工具至关重要.
- 有针对性的电子卫生干预措施可以弥合知识差距,并增强MASLD患者护理.
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