患有赫施普朗格病的青少年的肠道功能和生活质量
Remi Andre Karlsen1, Anders Telle Hoel2, Negin Karaji3
1Institute of Clinical Medicine, University of Oslo, Oslo, Norway.
患有赫施普朗格病 (HD) 的青少年经常经历功能性肠道问题. 对这些问题的有效管理对于维持他们的整体生活质量 (QoL) 至关重要.
科学领域:
- 儿科外科手术 儿科外科手术
- 胃肠病学 胃肠病学
- 生活质量研究生活质量研究
背景情况:
- 功能性肠道问题在希尔施普朗格病 (HD) 手术后的儿童中很普遍.
- 关于患有HD的青少年的肠道功能和生活质量 (QoL) 的数据有限.
研究的目的:
- 调查HD的挪威青少年的国家队列中的肠道功能和QoL.
- 为了比较HD青少年和对照组之间的QoL结果.
主要方法:
- 一项涉及挪威青少年 (12-18岁) 患有HD的横截面研究.
- 通过电子病历和验证问卷 (BFS,PedsQL-GSM,PedsQL-GCS) 收集的数据.
- 将 QoL 数据与大型对照组进行比较.
主要成果:
- 符合条件的HD青少年队伍中92%的参与率.
- 报告了显著的胃肠道症状",胃痛"和"气体和胀气"是最常见的.
- 患HD的青少年的PedsQL-GSM得分低于对照组,表明与胃肠道症状相关的QoL较差,尽管通用QoL是可比的.
结论:
- 持续的功能性肠道问题在患有HD的青少年中很常见.
- 尽管有肠道问题,但通用QOL通常是令人满意的.
- 管理肠道问题对于优化HD青少年整体QOL至关重要.
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