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了解在斯里兰卡农村地区流行性皮肤莱什曼病患者旅程的复杂性:定性研究
Sonali Dinushika Gunasekara1, Nuwan Darshana Wickramasinghe2, Kosala Gayan Weerakoon3
1Department of Community Medicine, Faculty of Medicine and Allied Sciences, Rajarata University of Sri Lanka, Saliyapura, Anuradhapura, Sri Lanka. sonal.ph@med.rjt.ac.lk.
BMC infectious diseases
|October 31, 2025
概括
在斯里兰卡,皮肤莱什曼病 (CL) 的患者旅程是复杂的,在临床治愈后仍存在显著的延迟和心理社会影响. 了解这些挑战是改善忽视疾病护理的关键.
科学领域:
- 全球健康 全球健康
- 热带医学 热带医学
- 皮肤病学 皮肤病学
背景情况:
- 患者和医疗保健提供者的经验对于了解患者的旅程至关重要,特别是农村地区被忽视的疾病.
- 皮肤雷什曼病 (CL) 严重负担受影响的社区和卫生系统,由于慢性,毁容皮肤病变.
- 这项研究考察了斯里兰卡生物医学医疗保健系统进入后的CL个体的经验.
研究的目的:
- 检查进入生物医学医疗保健系统后的CL患者的经验.
- 将这些发现与之前的工作结合起来,在斯里兰卡的疾病流行区绘制整个CL患者旅程.
- 为提供以证据为基础的,特定于环境的干预措施,以减少CL的公共卫生负担.
主要方法:
- 在斯里兰卡Anuradhapura区的三个农村社区进行的定性研究.
- 通过参与者体验反思期刊 (PERJ),PERJ后访谈和与医疗保健专业人员的访谈收集的数据.
- 用于分析收集的数据的主题分析.
主要成果:
- 完成了30个PERJ,25个PERJ后面试和16个医疗保健专业人员面试.
- 患者在诊断和治疗方面面临延迟,可访问性问题,成本和竞争的责任增加了负担.
- 尽管有治疗方面的挑战,但符合性是令人满意的,尽管心理社会影响和恐惧持续超过临床治疗.
结论:
- 慢性病患者的旅程是复杂的,以延迟,障碍和持续的心理社会影响为标志.
- 调查结果强调需要具体的干预措施,以减轻在资源有限的环境中对CL的公共卫生负担.
- 改善患者的旅程需要解决超出临床治疗范围的系统性问题.
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