当期望与经验相遇时:自闭症评估前后与成年人进行的连续采访的定性分析
Maria Downey1, Juwayriyah Nayyar1, Suzanne Guerin1
1University College Dublin, Ireland.
Autism : the international journal of research and practice
|October 31, 2025
概括
了解成人自闭症诊断过程至关重要. 这项研究揭示了从自我发现和挑战到社区融合的不断发展的经验,为支持服务提供了见解.
科学领域:
- 神经发育障碍 神经发育障碍
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 越来越多的成年人被诊断为自闭症.
- 现有的研究往往依赖于回顾性账户.
- 了解不断变化的诊断经验对政策和实践至关重要.
研究的目的:
- 探索接受自闭症诊断过程的成年人的主观,时间经验.
- 在整个诊断过程中识别关键主题和挑战.
- 为个人,专业人士和政策制定者提供背景.
主要方法:
- 在自闭症诊断之前和之后,对14名成年人进行了连续的定性访谈.
- 通过视频会议或电子邮件进行的在线采访.
- 对面试数据进行主题分析,以确定模式和主题.
主要成果:
- 诊断旅程涉及"自我发现之旅"",导航诊断过程的挑战"和"孤立到倡导"等主题.
- 参与者报告了自我理解的动力,部分实现的好处和复杂的情绪.
- 挑战包括资源获取,系统缺陷,社会不平等和认知压倒.
- 这个过程促进了从隔离过渡到社区参与和倡导.
结论:
- 成人自闭症诊断是一个不断发展的过程,有着重要的主观经验.
- 这些发现强调了改善诊断途径和支持系统的需要.
- 了解这些经验可以为成年自闭症服务提供敏感的政策和实践提供信息.
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