成为别人:中风幸存者的耻辱的现象学旅程
I Gede Juanamasta1, Rapin Polsook1, Yupin Aungsuroch1
1Chulalongkorn University Bangkok, Thailand.
Journal of primary care & community health
|October 31, 2025
概括
内在的耻辱显著影响中风幸存者的康复,影响他们的自我认同和社会生活. 通过干预和社会教育解决这种耻辱是改善生活质量和恢复结果的关键.
科学领域:
- 神经学和康复科学 神经学和康复科学
- 心理学和社会科学 心理学和社会科学
- 质量健康研究 质量健康研究
背景情况:
- 脑卒中康复对幸存者的自我认知,心理健康和生活质量构成重大挑战.
- 内部化的社会耻辱加剧了这些困难,影响了康复和康复的结果.
- 在中风幸存者中,内在耻辱的经历仍然未被充分探索,特别是在不同的文化背景中.
研究的目的:
- 为了探索印尼中风幸存者的耻辱生活经验.
- 了解耻辱对自我认同,社会互动和恢复过程的影响.
- 在特定的文化背景下,提供关于中风幸存者面临的独特挑战的见解.
主要方法:
- 一个使用解释学现象学的定性研究.
- 来自印度尼西亚巴厘岛的神经康复中心的12名中风幸存者的有目的抽样.
- 半结构面试以印尼语进行,随后进行数据解释的专题分析.
主要成果:
- 出现了四个主题:自我接受的斗争,社会联系和沟通的挑战,应对外部的耻辱和歧视,以及弹性和支持系统的作用.
- 幸存者扎着改变身份,自我形象,寻找目标,重新发现有用性作为应对机制.
- 社会隔离,沟通障碍,值感和尊严丧失是重大挑战,这些挑战被抵御了弹性和强有力的支持系统.
结论:
- 内在的耻辱深刻影响中风幸存者的情感性,社会互动和自我认知.
- 有针对性的干预,包容性护理模式和社会教育对于提高幸存者的生活质量和康复至关重要.
- 未来的研究应该专注于更广泛的人群,并制定量身定制的干预措施,以减轻耻辱的负面影响.
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